Wednesday, October 27, 2010

Invisible

They call Autism the Invisible Disability. There's no outward physical markers. When most of our kids sit quietly, you'd never know they have a disability. But our kids, for the most part, don't sit quietly. There is vocal and physical stimming.  There's scripting, echolalia and rigid routines.

And then they do it in public and you get unsolicited advice and remarks. Or as Pixie Mama says people think of it as bad parenting.

Because when you see our kids with Autism all you see is their outward beauty. You don't see their brains misfiring, getting stuck on one word or script, or that even the softest clothes annoy them or loud sounds scare them.  That for some the world appears to be through thick glass and for others its like being at a rock concert all day long in front of the world's biggest speaker or so bright it's like living on the surface of the sun.

I know you can't "see" their Autism. I know it because when I look at the picture below I can't see it either but it's there.


I wonder if you could see it would you treat our children more kindly? Would you show them tolerance and compassion? Would you keep your mouth shut and not offer unsolicited advice? Would you keep your remarks to yourself?

But in all reality, if you look you can see it. You can see it in their behaviors, their way of speaking and lack of eye contact. 

At a current rate of 1 in 110 children living with Autism we are surrounded by it. Autism not really so invisible after all, is it?

Monday, October 4, 2010

Five

Because I can't say it any better I will be stealing song lyrics today. Forgive me.

When I see your face 
There's not a thing that I would change
'Cause you're amazing
Just the way you are

And when you smile
The whole world stop and stares for awhile
Cause MY BOY, you're amazing 
JUST THE WAY YOU ARE!

Happy 5th Birthday Boy Wonder!

You have come so far this year. Keep the progress coming! 
Love,
Mommy, Daddy, THE DIVA and Sweet Baby Girl