Showing posts with label autism. Show all posts
Showing posts with label autism. Show all posts

Tuesday, August 7, 2012

Parenting & Freedom of Choice

When you judge another, 
you do not define them,
you define yourself.
~Wayne Dyer



I do not usually engage in conversations about politics, religion or other peoples parenting choices. However, if you are going to presume to tell me how to parent my children well then, hey, let's go. Jersey just took her earrings off and put her hair in a ponytail. I am not thrilled with some of you.

I parent my children in the way that is best for them at this moment in time. For Boy Wonder that means ABA, attending public school and home therapies. It means a no tolerance policy of his aggressive behaviors. This is what is working for him. He can not communicate most of his thoughts and feelings to me. I have to guess all day everyday. I am filled with self-doubt on a regular basis. I have tried bio-med therapies and therapies other than ABA. They did not work for MY SON.

I know people for who the special diets, DIR/Floortime and other alternative therapies have worked. I am thrilled for them that THEIR CHOICES worked for THEIR CHILD. I am thrilled when any parents choices work for THEIR CHILD because it means they are parenting THEIR CHILD in the way that is best for THAT CHILD.

Now I'm going to rant.....

You do not know me. You do not know my son the way I know him. I parent him to the best of my capabilities. I play to his strengths and strive to overcome his deficits. I dislike intensely his autism. I have wondered every day for nearly 7 years what he is thinking and feeling. I see my child through a thick glass wall. He is yelling to me but I have to interpret and guess and make the best choices on limited information. I am alternately loving and stern with Boy Wonder depending on the day and situation.

I work on the assumption that he understands every word I say. I never say anything negative about him in front of him. I do not tolerate anyone else doing it either.  I realized that this was not the way to go years ago. After reading Carly's Voice, I knew that it was a great freaking parenting choice.

I am preparing for two different futures for my son. One in which he can live independently which is not likely and one in which he will need to live in a group home which is the one that is currently likely. I strive to change that every day. I also on occasion pray for it too. 

So for your review, I do not judge your parenting choices of your special needs kid. You are doing what works for your child. I am doing what works for MY CHILD. I am entitled to my thoughts and feelings on Boy Wonder's particular brand of autism just as you are entitled to your thoughts and feelings on YOUR CHILD'S autism.

For the adults on the spectrum who feel their parents didn't parent them in the way they would liked to be parented, I am sorry for your pain and experiences. I value your opinions. You are the ones leading the way for my son and other children on the spectrum. I try to learn from you. Your insight offers me a wonderful perspective. I appreciate and value it. At the end of the day, I am just trying to do the right thing for my son and for me that path is not always clear.


We ask people outside our community to treat us and our children with respect. How can we have the audacity to do that when we can’t treat each others choices with respect?
 

 

Tuesday, October 4, 2011

Six

It.....
happened.....
 in....
 the......
 blink.....
of.....
 an....
eye!!!!!
Six!!!!

Happy 6th Birthday to our Amazing Boy Wonder!
We Love You!!
Mommy, Daddy, THE DIVA and Sweet Baby Girl

Tuesday, September 27, 2011

The Four Hardest Words

It's not the load that breaks you down,
it's the way you carry it. 
~Lena Horne

I sit and watch THE DIVA figure things out. She wants to do everything herself. She gets mad if she can't figure it out. She gets mad if she can't something to do exactly what she wants. She gets fiercely mad. (I wonder where she gets that from?? Shut up) And she is so proud of herself when it all works out to her DIVA satisfaction.  But the one thing she, 9 times out of 10, will refuse to say is, "Can you help me?"
I know exactly whom she gets that lovely trait from. I'm a do it myself girl. I hate hate asking for help. Relying on other people? No thanks. 

Oh but the Boy Wonder has taught me, I must ask for help. I can not do this alone. It has gotten easier not quite 4 years in to ask for help for him. 

And now almost 4 years in, I am learning to ask for help for me. From the Mamas. From a few other very special people.

If you're just starting out on this road, ask for help. Take help that's offered. If not for you, do it for your kids. In watching THE DIVA struggle and refusing to ask for help, I've learned I need to ask so she can learn to ask for help.